My Industrial Cabin Build

[WoodChuckDad]

That looks like nice stuff. Interesting application process. Will you have to fully sand the beams smooth in order to apply it? Seems like it would be problematic to apply on a rough wood surface.

She tested it on some rough wood and it look very good. She chose one with a little “smoke” stain to it. She wants to leave our bedroom as is and I am not sure what her plan is for laurens room. She originally (after we had the beams up) said she wanted to paint them white. I told her to find out what color beams her divorce attorney liked. Apparently I lack fine skills of communication sometimes. The first test coating she did is still on ones of the posts. It is a white wash or salt wash. It looks horrible and reminds me of kitschy all you can eat seafood restaurant decor. Someday I will sand that down.

 

[BigBlue1]

I'd be right there with you calling the divorce attorney. Beautiful wood like that needs to stay looking like wood!

Given the way they showing application in the demo video on the web site I figured the wood would have to be smooth to rub off the product. Glad to hear you don't have to sand all the beams!

 

[WoodChuckDad]

We went with rough cut because we liked that look. We had to plane some ugly off it. Then she started liking a smoother look so the beams in the bedrooms were all plained, but not to 4s standards. The beams in the main room had much more weather exposure than the bedrooms. In the end , I am sure it will look great but I am focused on the move in right now.

 

[dirttoys]

About your daughter:

First God bless for what you have accomplished under your circumstances. Below are a list of the best diagnostic hospitals that I know of. You may already believe she has the correct diag, and treatment. If you have an inkling maybe something is being missed, and you have the time and resources, I would ask you to consider contacting a couple of these. Get her seen with all her records, maybe they can improve her lot in life, but, you will be certain all that can be has been.

• Brigham and Women's Hospital, Boston.
• Houston Methodist Hospital.
• Mount Sinai Hospital, New York.
• University of Michigan Health-Ann Arbor.
• Mayo Clinic-Phoenix.
• Vanderbilt University Medical Center, Nashville.
• Rush University Medical Center, Chicago.

Best to you and yours,

ed

 

[WoodChuckDad]

About your daughter:

First God bless for what you have accomplished under your circumstances. Below are a list of the best diagnostic hospitals that I know of. You may already believe she has the correct diag, and treatment. If you have an inkling maybe something is being missed, and you have the time and resources, I would ask you to consider contacting a couple of these. Get her seen with all her records, maybe they can improve her lot in life, but, you will be certain all that can be has been.

• Brigham and Women's Hospital, Boston.
• Houston Methodist Hospital.
• Mount Sinai Hospital, New York.
• University of Michigan Health-Ann Arbor.
• Mayo Clinic-Phoenix.
• Vanderbilt University Medical Center, Nashville.
• Rush University Medical Center, Chicago.

Best to you and yours,

ed

There is basicly one gastro clinic that seems to have experience with Ehlers Danlos. Her doctor has put in a referral. We are trying to get on the books. The recurring theme is people who are successful are near death. That gets them elevated. My daughter can no longer eat solid food. She requested an nj tube and her doctor thinks it may be a problem because her tract is so locked down and shows. No mobility. So they have put her on a liquid diet. We will call some of the places you listed and ask. But basically, she is starving and nobody seems to be able to do anything about it. Her doctor tells us that she needs care at a level above what anyone in her hospital system can provide. She is reaching out to colleagues searching for someone in the state who has experience with Ehlers who is a gastro surgeon. Lauren needs a gastro pacemakers or an abdominal feeding tube. And soon. Or she wont live. Thank you for the list. I will dig i tonit some tomorrow.

 

[Buppies]

Still praying for your daughter and your family

 

[dirttoys]

There is basicly one gastro clinic that seems to have experience with Ehlers Danlos. Her doctor has put in a referral. We are trying to get on the books. The recurring theme is people who are successful are near death. That gets them elevated. My daughter can no longer eat solid food. She requested an nj tube and her doctor thinks it may be a problem because her tract is so locked down and shows. No mobility. So they have put her on a liquid diet. We will call some of the places you listed and ask. But basically, she is starving and nobody seems to be able to do anything about it. Her doctor tells us that she needs care at a level above what anyone in her hospital system can provide. She is reaching out to colleagues searching for someone in the state who has experience with Ehlers who is a gastro surgeon. Lauren needs a gastro pacemakers or an abdominal feeding tube. And soon. Or she wont live. Thank you for the list. I will dig i tonit some tomorrow.

About 25 years ago I had a nerve impingement in my neck. Common treatment was a single level fusion. I was young and didn't want that for several reasons. There was one guy in the US doing a scope procedure to address it. I was not able to get on his schedule for a consult inside of 90 days.

I was in enough pain that I got up, went to work, took good pain killers as prescribed all day. When I couldn't stand it, I headed home, when I left I took a Percocet. then I would take another every 30 minutes until I passed out. Repeat.

I had my MRI messengered to his home, he called me on the following Saturday at 8pm, two weeks later I flew to Charlotte and had the surgery. I didn't get in front of everyone (George Seifert the 49er's coach) was the patient before me.

Find a doctor that has recently published work on ethers, call to congratulate them, send them flowers with a note begging for a consult, literally anything you have to do to get her a shot. There are processes and procedures set up just to keep you from contacting the few people that can help, you have to creatively work around those.

I can't imagine one of my kids in her situation (and I don't even really like mine JK), you might open a thread on here or other forums to get some ideas of the best way to get help, I am happy to help anyway I can.

Best,

ed

 

[WoodChuckDad]

After speaking to Dr’s at Cleveland, there is only one procedure that they recommend. Jejunostomy. A feeding tube into her small intestine. They are trying to schedule it as soon as possible. We have referral to UVA as well as a specialist in Richmond. We have an appointment with the Dr in Richmond, next week to verify that this is the proper procedure. Basically a sanity check.

We painted Lauren’s s room last night and moved all her belongings out of her apartment today. Gave a lot of stuff to her roommate. Basically all living room and dining room furniture. Everything we brought back fit in a 10 foot Uhaul.

 

[ovrszd]

After speaking to Dr’s at Cleveland, there is only one procedure that they recommend. Jejunostomy. A feeding tube into her small intestine. They are trying to schedule it as soon as possible. We have referral to UVA as well as a specialist in Richmond. We have an appointment with the Dr in Richmond, next week to verify that this is the proper procedure. Basically a sanity check.

We painted Lauren’s s room last night and moved all her belongings out of her apartment today. Gave a lot of stuff to her roommate. Basically all living room and dining room furniture. Everything we brought back fit in a 10 foot Uhaul.

This website needs choices on the good post icon, such as a heart.

 

[Buppies]

Still praying for your daughter and you