Parents with dementia, how dealing with that has gone.

[RandyT]

Just brought dad home 2 weeks ago from the nursing home after being placed on hospice. Had been in the hospital for Flu A and spent 5 days in the hospital, and was moved to a nursing home for rehab, but then had a setback and was sent back to the hospital for another 4 days, which the nursing home called and said we can't handle his illness without hospice. We will have to send him back to the nursing home. So after being in the nursing home for 2 weeks, and him wanting to come home I agreed. He suffers from dementia which at this stage is mostly lose of short term memory, with loose of other functions which basically prevents him from caring for himself. We are calling it late stage moderate to early stage late dementia. In his case he has advance COPD in conjunction with congestive heart failure and stage 3 kidney failure. So it is more likely that the COPD and heart disease will take him before the dementia gets the last of him. He is 83.

 

[ArlyA]

Just brought dad home 2 weeks ago from the nursing home after being placed on hospice. Had been in the hospital for Flu A and spent 5 days in the hospital, and was moved to a nursing home for rehab, but then had a setback and was sent back to the hospital for another 4 days, which the nursing home called and said we can't handle his illness without hospice. We will have to send him back to the nursing home. So after being in the nursing home for 2 weeks, and him wanting to come home I agreed. He suffers from dementia which at this stage is mostly lose of short term memory, with loose of other functions which basically prevents him from caring for himself. We are calling it late stage moderate to early stage late dementia. In his case he has advance COPD in conjunction with congestive heart failure and stage 3 kidney failure. So it is more likely that the COPD and heart disease will take him before the dementia gets the last of him. He is 83.

We feel for ya man.

 

[ultrarunner]

When mom came home to hospice the doctor said 7-10 days and provided morphine.

That 7-10 days turned out to be almost 10 weeks.

She was so happy to be home again… look out the window at her garden… she had improved so much hospice was evaluating stopping.

I was at first chided for not giving her morphine but she was not in any pain… morphine would have killed her.

The last 2 weeks was steady decline with one exception of remarkable clarity where she was back, realized her situation and gave instructions of what she wanted done… it was a gift to me and her best friend who would be with her when I was at work.

Just seeing the happiness at being home I will never forget.

The hospice team was outstanding but it helped moms friend was a retired nurse and mom had 50 years as RN…

I could not have done it alone…

Within several months 2 of moms neighbors passed on hospice at home… they were receiving dropper full of morphine and both were gone in 48 hours.

 

[RandyT]

Dad was on morphine, but right now there is a morphine shortage, so we had to switch him over to the fentanyl patch. Seems to be working OK. They are using it mostly to quiet his breathing and help with any pain. So far haven't had to open the black box.

Our team has went from 7 days a week, to 6 and then 4 but went to 3 before the 4 even completed. So either he is doing well, or they think he is getting better than average care from home.

Dad has lost a brother to pancreatic cancer, and a sister in law to congestive heart failure in the last month. Dad's brother drove down to see him in the nursing home a few hours after his own wife passed.

 

[kenmbz]

Dad is still under hospice care and morphine every hour.
Hospice nurse has no idea how he is still with us, he not been eating for over a week.
Drinks about 3/4 of an ensure and 1/2 glass juice per day.

He is lucid for about 10 min a day, the rest is sleeping or random conversation.

His GF is not as bad, but is pretty lost. Flew out there to help her settle bills, pay taxes etc.
A lot has not been paid for 10 months.
Not sure last time they filed federal, have an accountant working on that.