Parents with dementia, how dealing with that has gone.

   / Parents with dementia, how dealing with that has gone.
  • Thread Starter
#41  
Thanks to all for their kind words. 🄰 We were there about 2 years ago and did a modest "clean out" and this is why its not all that bad now. We took a bunch of things we thought elderly shouldn't be using anyway, like a leg hold coon trap. They'd never had coon troubles before! And a month later he was asking "where it had gone"" and other tools a 85yo shouldn't be using. This place will be cleaned up and put on the market ASAP.
 
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   / Parents with dementia, how dealing with that has gone. #42  
I have LOTS of stuff too. I am only 49 so I have plenty of time to use this stuff. But how can we live more mindfully as we age to not leave our offspring in this same situtation? I know you guys have shops full of stuff too.
Tag your ā€œtreasures. If it hasn’t been used in a year, odds are pretty good you will not. Time for a new home. When you bring in anything new, the old goes out (boots, shoes, drills, w/e)
 
   / Parents with dementia, how dealing with that has gone. #43  
Tag your ā€œtreasures. If it hasn’t been used in a year, odds are pretty good you will not. Time for a new home. When you bring in anything new, the old goes out (boots, shoes, drills, w/e)
That is a great plan. I have been trying to implement that lately.
 
   / Parents with dementia, how dealing with that has gone. #44  
Unless hazardous or toxic one call to a disposal company will quickly dispose of anything not titled…

The hazardous and/or toxic use to be simple but now requires extra steps… chemicals, batteries, liquids, meds, electronics, etc.

My CPA leased a copier and it has given years of good service but the company says a part no longer available.

He said ok… lease is up end of May so come and pick it up and lease company says $400 disposal fee!

Lease after 5 years has a $1 buyout… he said he never pd the dollar but Toshiba says they waived the buyout and gifted the copier…
 
   / Parents with dementia, how dealing with that has gone.
  • Thread Starter
#45  
The county they reside in has a free hazardous material drop off an hour drive away. We couldn't believe the 1/2 used and unopened containers we found around there. Seems every spring he purchased another set of garden chemicals he already had. In the first cleaned up we did, we found about 5 partial bags of lawn fertilizer that was still granular and usable.
 
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   / Parents with dementia, how dealing with that has gone. #46  
One of the bigger mistakes we made was not getting my Dad committed when he started losing his mind. We took his drivers license from him and his Doctors told him that he couldn't drive anymore, and I sabotaged his car, so that worked at keeping him home. Before that, he drove to town and didn't come back for three hours. It should of been 45 minutes. He didn't know where he went, he denied he was gone that long, and we realized that we had a potential problem.

Once he was stuck at home, he started calling people. He would get a wild idea, get on the phone to make it happen, and not tell anybody what he was doing. People showed up to take him to other states. He decided that Stanford had a cure for Dementia, but it was kept secret and the only way to get them to treat him was to go there in person. He called friends to pick him up so he could rent a car in another state. He figured that he would outsmart us that way. He booked airline tickets that we had to cancel. We took his wallet, but that freaked him out really bad, so we gave it back to him, but canceled all his cards.

Anytime he got a crazy idea, he acted on it. Most of them we where able to stop. But just yesterday we found out that he made changes to his medical insurance that now affects my mom. We don't know how bad it is yet, but it's not good.

It was hard to realize that his brain was gone, and he really had no idea what he was doing. Before he got really bad, he would have periods of sanity, and his biggest concern was to not be put in a home. We agreed to that, and it never happened, but it was VERY TEMPTING.

Another thing that he did that we didn't know about was messing up the Will. Fortunately, nothing permanent was done since my Mom is still alive and the lawyer was able to fix it, but it still cost her a couple of grand to undo his mistakes. It wasn't like he was trying to give anything away, he was more focused on keeping everything after he passed away so nobody would take it from him. Paranoid about money was a huge issue.

Once it happens, it only gets worse. Having a solid plan, and everything done and in writing for what happens afterwards is very important. Dealing with his stuff is easy, getting everything into Mom's name has been the challenge because of his never ending changes.
 
   / Parents with dementia, how dealing with that has gone.
  • Thread Starter
#47  
One of the bigger mistakes we made was not getting my Dad committed when he started losing his mind. We took his drivers license from him and his Doctors told him that he couldn't drive anymore, and I sabotaged his car, so that worked at keeping him home. Before that, he drove to town and didn't come back for three hours. It should of been 45 minutes. He didn't know where he went, he denied he was gone that long, and we realized that we had a potential problem.

Once he was stuck at home, he started calling people. He would get a wild idea, get on the phone to make it happen, and not tell anybody what he was doing. People showed up to take him to other states. He decided that Stanford had a cure for Dementia, but it was kept secret and the only way to get them to treat him was to go there in person. He called friends to pick him up so he could rent a car in another state. He figured that he would outsmart us that way. He booked airline tickets that we had to cancel. We took his wallet, but that freaked him out really bad, so we gave it back to him, but canceled all his cards.

Anytime he got a crazy idea, he acted on it. Most of them we where able to stop. But just yesterday we found out that he made changes to his medical insurance that now affects my mom. We don't know how bad it is yet, but it's not good.

It was hard to realize that his brain was gone, and he really had no idea what he was doing. Before he got really bad, he would have periods of sanity, and his biggest concern was to not be put in a home. We agreed to that, and it never happened, but it was VERY TEMPTING.

Another thing that he did that we didn't know about was messing up the Will. Fortunately, nothing permanent was done since my Mom is still alive and the lawyer was able to fix it, but it still cost her a couple of grand to undo his mistakes. It wasn't like he was trying to give anything away, he was more focused on keeping everything after he passed away so nobody would take it from him. Paranoid about money was a huge issue.

Once it happens, it only gets worse. Having a solid plan, and everything done and in writing for what happens afterwards is very important. Dealing with his stuff is easy, getting everything into Mom's name has been the challenge because of his never ending changes.
We agreed to not let him drive and have his auto keys and plan to sell their car asap. Gosh, so many things it do.
 
   / Parents with dementia, how dealing with that has gone. #48  
Anytime he got a crazy idea, he acted on it. Most of them we where able to stop. But just yesterday we found out that he made changes to his medical insurance that now affects my mom. We don't know how bad it is yet, but it's not good.
Discuss with attorney, but could try to get this reversed due to mental incapacity and see what happens.
 
   / Parents with dementia, how dealing with that has gone. #49  
My Grandma was starting in on dementia to where we couldn’t take care of her. In the assisted living she told us God told her to stop eating and go. The place forced her to eat and she lived another 8years not knowing who people were being generally pissed off the whole time.

That was 20 years ago and I still think about it often.
 
   / Parents with dementia, how dealing with that has gone. #50  
My Grandma was starting in on dementia to where we couldn’t take care of her. In the assisted living she told us God told her to stop eating and go. The place forced her to eat and she lived another 8years not knowing who people were being generally pissed off the whole time.

That was 20 years ago and I still think about it often.
I would say that is most if not all old people's worst nightmare, I know it's my dads.
 
   / Parents with dementia, how dealing with that has gone.
  • Thread Starter
#51  
My Grandma was starting in on dementia to where we couldn’t take care of her. In the assisted living she told us God told her to stop eating and go. The place forced her to eat and she lived another 8years not knowing who people were being generally pissed off the whole time.

That was 20 years ago and I still think about it often.
She should have filled one out those end of life care documents? (what are they called?)
 
   / Parents with dementia, how dealing with that has gone. #52  
In many ways I was very lucky by having someone that could be with mom when I was at work.

The person really cared and they hit it off from day one.

Mom would call my siblings and their spouses and it became a problem because sometimes it would be several times through the course of a day asking how they and the grandkids were doing and when she would see them again… some never visited at all through Covid citing social distancing.

I was told no one has time to deal with this as they have lives and Mom needs to be in a facility so no one need worry about her and if I object then it was on me to care for her.

I did end up filling her guest room with things she wanted to pack as she went through closets and dressers and I put a key lock on that door and door to the basement… minimizing areas for me to check.

Memory care here is 12k a month and mom wished to remain in her home and neighborhood and her Doctors agreed.

New neighbors that bought the house of moms good friend even called the county on me… during Covid… concerned mom was knocking on their door.

Each time the county social worker showed up I invited them in and all was good. They asked to check the refrigerator, bedroom, bathroom for grab handles and such and spoke with mom asking questions like do you know where you are and she would say in my house and this is my son… he does the cooking now…

Credit Union was unbelievably simple… the bank was a nightmare taking nearly 4 months and a total of 9 hours in visits… Both knew us well but the bank asked for so many documents then lost the trust documents twice and everything had to be reviewed by corp in another state.

In hindsight since our accounts were linked I could have just done a transfer before accounts frozen.

Frozen because social security notified the bank and clawed back the last payment.

After mom passed random older people would come to house saying they no longer see the nice lady on her daily walks… she really had the kindness of many and mom said as long as I can get around she is ok... she ran her last marathon at 75 and still holds age records for 50 mile and 50k ultra runs
 
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   / Parents with dementia, how dealing with that has gone.
  • Thread Starter
#53  
On our way back to northern MN to take care of things. Was home for three days which is plenty of time off. :(
 
   / Parents with dementia, how dealing with that has gone. #54  
About 20 years ago when my grandmother died a good deal of her stuff was stuff that was really of almost no value and was given away to folks that could use it. Then the good stuff was loaded up and hauled from the Bay Area to Mercer Island in WA state. All the stuff was unloaded and displayed for all to see. My folks got first dibs and claimed anything they really wanted, which wasn't much. Then the grandkids, and the great grandkids, took turns claiming stuff. If someone wanted something that someone else previously claimed then a little trading went on. This worked perfectly, there were no arguments. Now my parents have both died and the same process will occur. I'm sure it will work out very well. My brothers and their wives all loved my parents and they loved us. I love all my brothers and their wives and children. I think they feel the same way about me and my family:). I'm sure it is going to be a bittersweet time but we will in the end all walk away happy with each other.
Eric
 
   / Parents with dementia, how dealing with that has gone. #55  
I have seen families store things for decades only to be tossed…
And how long have YOU stored stuff that is rarely used? :)
Got back last night and my dearest is heading back to work for 3 days. (I just retired in March) She assumes its a piled up mess in her department. In her home town, they had a brand new powered of attorney drawn up but 1/2 her time was spent going to another bank to sign more papers, getting the assisted living unit to do this and that, and getting drugs who her folks were running out of found that had been send to the wrong pharmacy. Between making calls, seeing here folks, going back to signing yet more papers, very little time was spend organizing there belongings. We are heading back over the weekend. o_O
Hang in there.
It's a fight to balance the culture of consumerism with the finality of death.
"Stuff" we all on TBN have been bragging about (our "great" buys, tractors, attachments, tools, etc.) may seem worthless to our heirs.
 
   / Parents with dementia, how dealing with that has gone. #56  
Then the good stuff was loaded up and hauled from the Bay Area to Mercer Island in WA state. All the stuff was unloaded and displayed for all to see. My folks got first dibs and claimed anything they really wanted, which wasn't much. Then the grandkids, and the great grandkids, took turns claiming stuff. If someone wanted something that someone else previously claimed then a little trading went on. This worked perfectly, there were no arguments.
That's about the same we did with my MIL's 11 siblings that predeceased her. Dibs were USUALLY determined by closeness of relation or if the person wanting it had "connection". Like if someone had cooked with Granny and used the KitchenAid Mixer they were more likely to get it. Or if someone had shot with Charles and used his rifle.
But with all 11 siblings the process is finishing fairly smoothly.
But her passing was the first in the modern age of EVERYONE related has a cell phone and can do SMS with good pictures. This saved hours of discussion.
 
   / Parents with dementia, how dealing with that has gone. #57  
Arly, that is rough going. We've been fortunate as the folks kept most of their wits. Mom's still in SF. We started the process while dad was in Hospice. Took a lot of stuff to St. Vincent's. I've got to go back up in the Fall with the truck and bring more stuff south. I reckon since it is your spouse's folks, you can just be the hired help. I found that easier when MIL passed.

Ely's darn near Canada. When you said northern MN, I was thinking Walker or so. Be safe.
 
   / Parents with dementia, how dealing with that has gone. #58  
And how long have YOU stored stuff that is rarely used? :)

Hang in there.
It's a fight to balance the culture of consumerism with the finality of death.
"Stuff" we all on TBN have been bragging about (our "great" buys, tractors, attachments, tools, etc.) may seem worthless to our heirs.
Decades for some project cars…

The days of knocking out a frame up restoration in 12 months in my spare time have been on hold for a long time.

The vehicles keep appreciating and I have room to store inside…

I was thinking of a friend who lost her mom in 1972 and has been paying storage 52 years and it drives her husband crazy.

Twice the public storage unit broken in and the first time the real silverware and 2 very ancient dynasty vases taken plus her fathers craftsman tools.

She is saving for her daughter who is now retired so she offered to her only grandchild who is a scientist all over the world with never a permanent place to call home.

I have wondered how the math for a 10x20 storage locker pans out… large dining table with chairs, hutch, bed with mattresses, dressers and two leather recliners.
 
   / Parents with dementia, how dealing with that has gone. #59  
Arly, that is rough going. We've been fortunate as the folks kept most of their wits. Mom's still in SF. We started the process while dad was in Hospice. Took a lot of stuff to St. Vincent's. I've got to go back up in the Fall with the truck and bring more stuff south. I reckon since it is your spouse's folks, you can just be the hired help. I found that easier when MIL passed.

Ely's darn near Canada. When you said northern MN, I was thinking Walker or so. Be safe.
St Vincent’s and some of the others are getting very picky… at least here in SF area.

Seen several cherry pick and then leave it to the Realtor to deal with.
 
   / Parents with dementia, how dealing with that has gone. #60  
St Vincent’s and some of the others are getting very picky… at least here in SF area.

Seen several cherry pick and then leave it to the Realtor to deal with.
I mean Sioux Falls when I say SF. šŸ˜€
 

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